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Showing posts with label adverse event. Show all posts
Showing posts with label adverse event. Show all posts

The "Pink Piggy" Van and H1N1

Yesterday afternoon, I was fortunate (to my surprise) to be able to get at our pediatrician's office swine flu shots for Sarah, Josh, and Emma. No-o-o!, the office wasn't mobile, and it sure didn't look anything like this van. Not that the humor of the moment would have trumped my children's outrage, even if it had. After all, I was culpable. I had suffered them to be vaccinated point blank. I was unforgiven for so long as it took to drive home and their little arms ached.

To be sure, whether or not to vaccinate for H1N1 at all, as well as what steps to take to care for one's child if s/he does get the flu, continues to weigh on parents' minds across the country. In addition to frequent hand washing to prevent the transmission of germs, many of us have also adopted instant hand sanitizers. I know that I, for one, carry them around in my purse, in the car, and packed in with kid gear to have on hand for those moments when we can't wash up. So far so good. Surfing the Web, though, my attention was drawn to an article about the dangers of their improper use.

Yes, under ordinary circumstances, instant sanitizers safely and effectively destroy the majority of bacteria and viruses that can cause illnesses. They are, however, potently toxic chemicals that can cause unintended injury. The most familiar danger is hand sanitizer poisoning, especially in the very young. Most sanitizers contain 60 percent to 90 percent alcohol (commonly ethyl or isopropyl alcohol) -- a stronger concentration than most hard liquors! If ingested, even a small amount could lead to dizziness, slurred speech, headaches, and even brain damage or death in extreme cases. That translates into being certain to keep them out of sight when not in use, and out of the hands of inquiring little people who might be attracted by their scents or packaging (like my three "peeps") . . . fer shur!



(double click the video to see a larger version play on YouTube.com)

Photo Credit: See Ellen's post, entitled "Update On The Swine Flu" at To The Max featuring the "Pink Piggy van." 0 comments

Parenting In Survival Mode

Survival Mode ParentAmong the many things I am learning as a "newbie" to the blogosphere are the wonderful resources provided by families with special needs. Having just earlier today become a March of Dimes advocate to fight for healthy babies, it wasn't easy for me to revisit painful memories of Sarah in the NICU fighting for her life. So was I amazed (and pleased!) to stumble upon a truly wonderful Website designed to build a robust network of volunteers to help provide basic needs to parents with children in the NICU and PICU. The creator, Mandy, whose energy and generous spirit are truly inspiring, matches bloggers who can help to bloggers (or non-bloggers) who need help at this difficult time with their child.

Click on the link to go directly to Survival Mode Parent and learn more, including the locations of volunteers, and be sure to read the wonderful NICU primer, written by a remarkable Mom, whose own little girl, Maddie (short for Madeline) died just seven months ago . . . then read her touching, latest post at In the Scheme of Things . In honor of Maddie and the joy she brought her parents and family, the poem below expresses a beautiful sentiment, I think.

God Sent to Me an Angel
Written by Paul Dammann

God sent to me an angel, it had a broken wing.
I bent my head and wondered,
"How could God do such a thing?"
When I asked the Father why
He sent this child to me,
the answer was forthcoming,
He said "Listen and you'll see."
"My children are all precious, and none is like the rest.
Each one to me is special, and the least is as the best.
I send each one from Heaven and I place it in the care
of those who know my mercy, those with love to spare.
Sometimes I take them back again.
Sometimes I let them stay.
No matter what may happen.
I am never far away.
So if you find an angel and you don't know what to do.
Remember, I am with you,
love is all I ask of you."

Hat tip: Poetry Soup For The Soul 0 comments

Bids For Sarah Bear Online Auction!

An update to our earlier post about an online auction planned to raise funds for Sarah's medical expenses. Across the past two and one-half weeks when our household was running at half steam, I realized that holding the auction this Fall in 2009 was just too ambitious. We have received some wonderful goods and services donated for auction, as well as generous offers of volunteer assistance to help us mount it, and extend our thanks to everyone! But with a bout of intensive physical therapy sessions coming up for Sarah and just next week even, Botox treatment to help reduce her muscle spasticity due to cerebral palsy, I realized the need to reset the auction to Spring 2010.

So we'll definitely look forward to seeing you then! We've got items for auction that are going to wow you!

Meanwhile, about the use of Botox, we have used it before after closely consulting with Sarah's neurologist and always watch her very closely. The use of Botox to treat muscle spasticity in cerebral palsy is not without a lot of worrisome risk, and has received a lot of stepped-up attention this year from the US Food and Drug Administration (FDA), which has never approved botulinim toxin for this use. Early this summer, it issued a warning statement to be placed on labels about possible negative effects. The agency's recommendations to parents and healthcare providers include:
Be alert to and educate patients and caregivers about potential adverse events due to distant spread of botulinum toxin effects following local injections including: unexpected loss of strength or muscle weakness, hoarseness or trouble talking (dysphonia), trouble saying words clearly (dysarthria), loss of bladder control, trouble breathing, trouble swallowing, double vision, blurred vision and drooping eyelids; understand that these adverse events have been reported as early as several hours and as late as several weeks after treatment; advise patients to seek immediate medical attention if they develop any of these symptoms.

If a child does have a bad reaction to Botox treatment, the FDA suggests reporting the incident through its MedWatch Adverse Event Reporting Program.
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