While the cost of the injections' was a formidable $36,000, stories like Sierra's (the young girl from Florida, and of Andrew with cerebral palsy (see his before and after video here on this site), are the very stuff that quickens the ardor of me and Sarah's dad to see that she benefits also.
Showing posts with label stem cell. Show all posts
Showing posts with label stem cell. Show all posts
Another Story of Hope
Labels: stem cell, treatment
Another story of hope from stem cell therapy, I just caught on the 'net via the Associated Press. An 8-year-old girl from Titusville, Florida, with spinal muscular atrophy, just returned from a trip to China for treatment with stem cells. Her family says she improved each of the 34 days she was there. You can catch the full story here.
While the cost of the injections' was a formidable $36,000, stories like Sierra's (the young girl from Florida, and of Andrew with cerebral palsy (see his before and after video here on this site), are the very stuff that quickens the ardor of me and Sarah's dad to see that she benefits also.
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While the cost of the injections' was a formidable $36,000, stories like Sierra's (the young girl from Florida, and of Andrew with cerebral palsy (see his before and after video here on this site), are the very stuff that quickens the ardor of me and Sarah's dad to see that she benefits also.
Paths to Treatment
Labels: cerebral palsy, stem cell, treatment
Stem cell therapy is a modern marvel, and something her father and I aim to pursue for Sarah. The basics of understanding the promise of stem cell treatment are described at the Stem Cell Information Center, a service of the US National Institutes of Health (NIH). And its implications for those with cerebral palsy (CP) even more dramatically described on the website of 4MyChild, a foundation dedicated to advancing CP research and providing centralized access to current information about cutting-edge therapy and treatment resources. For example, many special needs children (including other disabilities beyond CP, such as autism, spinal atrophy, and muscular dystrophy) have benefited from unique therapies enabling them to take their first steps after years of immobility or reliance upon a wheelchair. Many such cases have occurred in China, and you can catch still more details (and often videos) that have been published on China’s leading Stem Cell News site at http://www.stemcellschina.com.
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Below is a video from earlier this year (2009) of a toddler, Andrew Ricci, with cerebral palsy (CP) who received two courses of treatment in China with noticeable improvements. Like Sarah, Andrew was born a "preemie," weighing only 1lb 9oz at birth. Despite a rough beginning (97 days in the NICU, followed by incubation for another six weeks), his father describes him as a precocious and happy child. You can watch the video to hear him describe Andrew's clinical condition "before" and "after" or read excerpts from the transcript here.
Labels:
brain injury,
fundraising,
GBS,
intensive physical therapy,
premature birth,
stem cell,
treatment
All About Sarah
by Sarah's Mom
Hi there! My name's Michele and I am Sarah's Mom. I am also mother to her two wonderful siblings -- Sarah’s twin brother, Joshua, and her younger, 9-month old sister, Emma. In addition to Sarah's challenges due to her brain injury as a newborn, my husband also battles a form of muscular dystrophy. As a family, we have had our abilities and resources tested, it's true (the "tattoos" of life), but we also share a lot of love and a lot of laughter. More than anything, I am grateful for my wonderful family, whose story is also Sarah Bear's. With lots of support from relatives and friends, we strive every day to make our children’s lives joyous ones, filled with opportunities, and wonderful memories.
Meet Sarah Bear
by Sarah Bear's Mom
Sarah was born a beautiful, and healthy baby on March 6th, 2007, along with her fraternal twin, her "big" brother (older only by one minute). Then, a little over a month later, on April 16, 2007, Sarah became very ill and we didn't know what was wrong. We rushed her to the hospital only to learn she had a life threatning case of meningitis due to a late on-set Group B Strep infection (GBS). Sarah's brain was swelling, but we hoped and prayed for a miracle that she would not be affected from this deadly infection. Unfortunately, Sarah's brain scan revealed a profound loss of brain tissue and her medical team predicted she would be at the level of a newborn for the rest of her life, if she even survived.
BUT!!!... (we like this part, hence the exclamation points)...
Not only did Sarah survive, she is doing far better (lots more!) than her doctors ever predicted, despite living and growing up with a seizure disorder, cerebral palsy, sensory integration disorder, developmental delays, and vision loss. In fact, this vivacious, little toddler girl is learning both to sit and stand up, gives sweet kisses (the best!), and even says a few words and hums various songs. We believe all of this is due to intensive early intervention and the love and encouragement of family and friends. For this, we are very thankful. Please help Sarah reach her full potential!
Donations:
Within the next two years (2009-2011), we hope to meet our goal of raising $25,000 - $35,000 in order to fund three different treatments/therapies for Sarah that we believe will help her reach her fullest potential. Time is critical because most children make their greatest gains within the first three to five years of life. Unfortunately, health insurance does not recognize or cover any of these therapies from which Sarah, who is now two and a half years old, could benefit. They include:
*Currently available only in Europe, China, and elsewhere outside the US
All About Sarah
by Sarah's Mom
Hi there! My name's Michele and I am Sarah's Mom. I am also mother to her two wonderful siblings -- Sarah’s twin brother, Joshua, and her younger, 9-month old sister, Emma. In addition to Sarah's challenges due to her brain injury as a newborn, my husband also battles a form of muscular dystrophy. As a family, we have had our abilities and resources tested, it's true (the "tattoos" of life), but we also share a lot of love and a lot of laughter. More than anything, I am grateful for my wonderful family, whose story is also Sarah Bear's. With lots of support from relatives and friends, we strive every day to make our children’s lives joyous ones, filled with opportunities, and wonderful memories.
Meet Sarah Bear
by Sarah Bear's Mom
Sarah was born a beautiful, and healthy baby on March 6th, 2007, along with her fraternal twin, her "big" brother (older only by one minute). Then, a little over a month later, on April 16, 2007, Sarah became very ill and we didn't know what was wrong. We rushed her to the hospital only to learn she had a life threatning case of meningitis due to a late on-set Group B Strep infection (GBS). Sarah's brain was swelling, but we hoped and prayed for a miracle that she would not be affected from this deadly infection. Unfortunately, Sarah's brain scan revealed a profound loss of brain tissue and her medical team predicted she would be at the level of a newborn for the rest of her life, if she even survived.
BUT!!!... (we like this part, hence the exclamation points)...
Not only did Sarah survive, she is doing far better (lots more!) than her doctors ever predicted, despite living and growing up with a seizure disorder, cerebral palsy, sensory integration disorder, developmental delays, and vision loss. In fact, this vivacious, little toddler girl is learning both to sit and stand up, gives sweet kisses (the best!), and even says a few words and hums various songs. We believe all of this is due to intensive early intervention and the love and encouragement of family and friends. For this, we are very thankful. Please help Sarah reach her full potential!
Donations:
Within the next two years (2009-2011), we hope to meet our goal of raising $25,000 - $35,000 in order to fund three different treatments/therapies for Sarah that we believe will help her reach her fullest potential. Time is critical because most children make their greatest gains within the first three to five years of life. Unfortunately, health insurance does not recognize or cover any of these therapies from which Sarah, who is now two and a half years old, could benefit. They include:
- $5,000 per round of HBOT treatments - Hyberbaric Oxygen Therapy
- $6,000 for a 3-week program - Therasuit Intensive Therapy
- $25,000 for a round of stem cell therapy*
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